Showing posts with label Syndrom. Show all posts
Showing posts with label Syndrom. Show all posts
23

Stefan, the stranger but yet so close

Posted by Claudia Moser on 11:17 AM in , , , , ,

A while ago I entered a Romanian cooking group on Facebook and there I 'met' Ceska, and on the 2nd of April 2012 she gave us all (members of the group) the news that one of her best friends' son received the Apert Syndrome diagnosis. To be honest I have not read a lot about it before and doing some research I realised how hard it to run this battle, mostly for the parents who must feel so helpless.



Wikipedia defines this as 'Apert syndrome is a form of acrocephalosyndactyly, a congenital disorder characterized by malformations of the skull, face, hands and feet. It is classified as a branchial arch syndrome, affecting the first branchial (or pharyngeal) arch, the precursor of the maxilla and mandible. Disturbances in the development of the branchial arches in fetal development create lasting and widespread effects.' 



At the moment the parents are doing their best to find the best cure for Stefan, this includes also investigations with German specialists who will assess his situation and establish an operation plan, since he has to go through several interventions.

More details (in Romanian though) can be found under this blog or on his Facebook page.


For those of you who would be interested in supporting Stefan you could make a donation on the following accounts from RAIFFEISEN BANK TIMISOARA opened on his father's name NICORESCU ADRIAN NICOLAE:


Account in EURO:RO76 RZBR 0000 0600 1443 0200

Account in USD:   RO27 RZBR 0000 0600 1443 0209
Code SWIFT RZBRROBU

In case you would spread the word I would be very grateful. I never met Stefan, he is indeed  a stranger to be, but he is a child, who deserves all the best, so he could learn to smile and be happy with his family!

God bless little darling, I simply hope for you!




Picture from here

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