The story: Stefan, the stranger but yet so close

Stefan, the stranger but yet so close

A while ago I entered a Romanian cooking group on Facebook and there I 'met' Ceska, and on the 2nd of April 2012 she gave us all (members of the group) the news that one of her best friends' son received the Apert Syndrome diagnosis. To be honest I have not read a lot about it before and doing some research I realised how hard it to run this battle, mostly for the parents who must feel so helpless.

Wikipedia defines this as 'Apert syndrome is a form of acrocephalosyndactyly, a congenital disorder characterized by malformations of the skull, face, hands and feet. It is classified as a branchial arch syndrome, affecting the first branchial (or pharyngeal) arch, the precursor of the maxilla and mandible. Disturbances in the development of the branchial arches in fetal development create lasting and widespread effects.'

At the moment the parents are doing their best to find the best cure for Stefan, this includes also investigations with German specialists who will assess his situation and establish an operation plan, since he has to go through several interventions.

More details (in Romanian though) can be found under this blog or on his Facebook page.

For those of you who would be interested in supporting Stefan you could make a donation on the following accounts from RAIFFEISEN BANK TIMISOARA opened on his father's name NICORESCU ADRIAN NICOLAE:

Account in EURO:RO76 RZBR 0000 0600 1443 0200

Account in USD: RO27 RZBR 0000 0600 1443 0209

Code SWIFT RZBRROBU

In case you would spread the word I would be very grateful. I never met Stefan, he is indeed a stranger to be, but he is a child, who deserves all the best, so he could learn to smile and be happy with his family!

God bless little darling, I simply hope for you!

Picture from here

Motto

"A story is not like a road to follow … it's more like a house. You go inside and stay there for a while, wandering back and forth and settling where you like and discovering how the room and corridors relate to each other, how the world outside is altered by being viewed from these windows. And you, the visitor, the reader, are altered as well by being in this enclosed space, whether it is ample and easy or full of crooked turns, or sparsely or opulently furnished. You can go back again and again, and the house, the story, always contains more than you saw the last time. It also has a sturdy sense of itself of being built out of its own necessity, not just to shelter or beguile you."
by Alice Munro

Ceska777 says:

12:00 PM

Thanks so much! I`ll be holdng myself Stefan in my arms in less than 10 days.......so touching.

Claudia Moser says:

12:04 PM

@Ceska - how wonderful, so he will travel to Germany soon, that is great!

Southhamsdarling says:

12:49 PM

Prayers being offered up for little Stefan. Poor little soul, and his poor parents and family. I can't tell you how blessed that I feel, to have healthy grandchildren and children. I support and do voluntary fund-raising work for the local Childrens' Hospice and some of the stories are just SO touching. Lovely post Claudia.

12:58 PM

@Diane - yes, health is so important in one's life, I agree with you. I also would love to get more involved in supportin children, I believe we must help as much as we can!

Anonymous says:

9:29 PM

Praying for Stefan and his family.

9:37 PM

@Anna - thank you!

Unknown says:

11:05 PM

Thank you for sharing this. I have never heard of this syndrome before - Stefan and his family are in my thoughts and prayers.

8:38 AM

@Bibi - raising awarnesss is also vital, glad I could raise your interest.

11:03 AM

Thank you a lot for your support!
Florina, Stefan's mother.

3:21 PM

@Florina - va doresc toata puterea din lume!

9:40 PM

Way to go Claudia, Stephan needs champions.

9:52 PM

@Gene Pool Diva - thank you, he needs all the help he can get!

7:14 PM

wow Claudia..this brought tears to my eys; Stephan is a champion..we all become stronger as we truly find common ground understanding and compassion. Properties which are deposited so deep within you ((hugs))

8:25 PM

@Drchomeydwecrm - thank you!

9:28 PM

Claudia, I can offer my prayers for little Stefan and his family. I find myself easily having feelings for strangers.

9:33 PM

@Beachlover - thank you so much!

3:41 PM

My prayers are with Stefan and his family, Claudia.

4:51 PM

@Beth - thank you, very kind of you!

Amy Morgan says:

10:46 PM